Human dignity and consent in research biobanking
نویسندگان
چکیده
منابع مشابه
Informed consent in genetic research and biobanking in India: some common impediments
The principle of informed consent, codified in the Declaration of Helsinki, has been widely seen as fundamental to bio-medical and research ethics. The importance of informed consent is increasing in procedures regulating the acquisition, possession and use of personal information, including genetic and medical information. Informed consent, it is believed, ensures that patients and research su...
متن کاملDeveloping a Simplified Consent Form for Biobanking
BACKGROUND Consent forms have lengthened over time and become harder for participants to understand. We sought to demonstrate the feasibility of creating a simplified consent form for biobanking that comprises the minimum information necessary to meet ethical and regulatory requirements. We then gathered preliminary data concerning its content from hypothetical biobank participants. METHODOLO...
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BACKGROUND and PURPOSE This article describes several ethical, legal, and social issues typical of international genetics biobanking, as encountered in the Type 1 Diabetes Genetics Consortium (T1DGC). METHODS By studying the examples set and lessons learned from other international biobanking studies and by devoting considerable time and resources to identifying, addressing, and continually...
متن کاملBiobanking in Cancer Research
The availability of a biological resource such as human tissue and its derivatives for research that is fit for purpose and linked to well-annotated clinical data under approved ethical protocols is an essential facility for biomedical research, especially in the present era of personalized, translational medicine. The importance of these facilities have been recognized in the popular media wit...
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ژورنال
عنوان ژورنال: South African Journal of Bioethics and Law
سال: 2012
ISSN: 1999-7639
DOI: 10.7196/sajbl.237